Quantifying the Body: Disability, Data, and Governance in India

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Degree type
Doctor of Philosophy (PhD)
Graduate group
Education
Discipline
Critical and Cultural Studies
Subject
disability
enumeration
governance
identification
India
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Copyright date
01/01/2024
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Author
Fernandes, Kimberly
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Abstract

Recent legislation in India outlines a comprehensive framework for the rights and entitlements of people with disabilities to welfare services. However, the process of being legally certified as disabled is often fraught, due to which millions of disabled people across the country are not officially counted as having a disability. This dissertation takes the process of disability certification as an analytical entry point into exploring how the body comes to be quantified as disabled in India. To do so, it follows two forms of certifying disability: the paper-based disability certificate and the digital unique disability ID (UDID) card. Drawing on interdisciplinary scholarship on disability, data and governance, this dissertation studies how people come to be certified as disabled in India, and how the process of certification in turn shapes personhood, belonging and recognition for disabled communities. Beginning in Delhi and moving virtually across urban India, the dissertation begins by attending to a central number on the disability certificate or UDID card – a person’s disability percentage. Although the disability percentage circulates as a fixed number, it emerges from a functional classification of ability and engenders a fluid, gradated relationship between disabled people and the state. The dissertation also examines process of certification marks peoples’ experiences of time through fragmentation and stasis. Subsequently, it turns to the disability certificate’s proposed successor, the UDID card, and in doing so demonstrates how imaginaries of the digital shape the futures of disabled people. Finally, the dissertation attends to the question of who counts as disabled and under what circumstances to show that being legally recognized through certification is inextricably intertwined with many other concerns that disabled communities have. This dissertation contributes to the anthropology of bureaucracy and recognition, science and technology studies, and disability studies. By tracing how disability as a category comes to be made numerically, and by interrogating how perceived deviance from bodily norms come to be made into data, the dissertation offers ethnographic and archival insights into questions of identification, governance, and marginality.

Advisor
Hall, Kathleen, D
Anand, Nikhil
Date of degree
2024
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