Center for Bioethics Papers

Document Type

Journal Article

Date of this Version

April 2002


Biomedical researchers often assume that sponsors, subjects, families, and disease-associated advocacy groups contribute to research solely because of altruism. This view fails to capture the diverse interests of many participants in the emerging research enterprise. In the past two decades, patient groups have become increasingly active in the promotion and facilitation of genetics research. Simultaneously, a significant shift of academic biomedical science toward commercialization has occurred, spurred by U.S. federal policy changes.


Reprinted from The American Journal of Human Genetics, Volume 70, Issue 4, April 2002, pages 965-971.
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Date Posted: 12 March 2007