Center for Bioethics Papers
Title
Protecting Subjects' Interests in Genetics Research
Document Type
Journal Article
Date of this Version
April 2002
Abstract
Biomedical researchers often assume that sponsors, subjects, families, and disease-associated advocacy groups contribute to research solely because of altruism. This view fails to capture the diverse interests of many participants in the emerging research enterprise. In the past two decades, patient groups have become increasingly active in the promotion and facilitation of genetics research. Simultaneously, a significant shift of academic biomedical science toward commercialization has occurred, spurred by U.S. federal policy changes.
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Date Posted: 12 March 2007
Comments
Reprinted from The American Journal of Human Genetics, Volume 70, Issue 4, April 2002, pages 965-971.
Publisher URL: http://www.journals.uchicago.edu/AJHG/journal/